EVIDENCE-BASED ASSERTIVE COMMUNITY
TREATMENT.
This tool kit provides an introduction to evidenced-based
Assertive Community Treatment (ACT) programs. It
will help state mental health planning and advisory
council members and others assess the community-based
program and services offered in their state plans
for people with severe and persistent mental illness. See link.
•
ASSERTIVE COMMUNITY TREATMENT
PROMOTES RECOVERY: AN INTERVIEW WITH JOE PHILLIPPS,
Elizabeth Edgar. A personal story of a man receiving
supports through a Assertive Community Treatment (ACT)
program.
•
PACT Manual, NAMI
The National Alliance for the Mentally Ill (NAMI)
calls ACTT, Programs for Assertive Community Treatment,
but the manual is about serving a population who need
a “hospital without walls”, the original term used
to described what an ACTT/PACT would do. See link.
•
SERVING TEENS WITH ASSERTIVE
COMMUNITY TREATMENT.
Conversations with Jana Frey, Ph.D., and Judith Bradshaw-Rouse.
•
MORE ABOUT THE CLIENT-CENTERED
APPROACH TO INDIVIDUALIZED SERVICES FOR PEOPLE WITH
SERIOUS MENTAL ILLNESS, Deborah J. Allness.
Why ACT Tailors Treatment, Rehabilitation and Support
Services to the Individual Client, Barriers to Implementing
Comprehensive Assessment and Individualized Treatment
Planning, and Information on ACT Client-Centered Comprehensive
Assessment and Individualized Treatment Planning.
PEOPLE ARE PEOPLE, James Meadours
and Bonnie Shoutlz
The story of two individuals who work on the local
and national stages for the promotion of self-advocacy. See
Link.
•
ONE DAY AT A TIME, CHANGING A
SYSTEM TO REALIZE A DREAM, John O’Brien, Ray Browning
and Connie Lyle O’Brien.
Ray has helped to change the rules in our state’s service
system and make the world of possibilities bigger for
a growing number of people with disabilities. Along
the way he has learned a lot about how to play a part
in making social change. See Link.
•
THOUGHTS ABOUT MY LIFE, Karen
Manning, Robin Reale, Michael Smull and Liz Obermeyer.
It's a workbook that gives people a way to write stories
about their lives. Those stories can be used to help
facilitate planning meetings. They can also help family,
friends and service agencies pay attention to what people
say is important to them. See
Link.
•
INTEGRITY AND ADVOCACY, Michael
Kendrick.
All human activities are bound by questions of moral
and ethical scrupulousness, and advocacy in this contemporary
form, should not be exempted from comparable scrutiny.
•
EXAMPLES OF SOME SUCCESSFUL STRATEGIES
IN EMPOWERING THOSE WHO UTILIZE SERVICES, Michael Kendrick.
The characteristics of modern service organizations
can often have the effect of disempowering those who
rely on “services” for assistance.
•
ADVOCACY AND THE CHALLENGING
OF AUTHORITY, Michael Kendrick.
Perhaps one of the most challenging elements of advocacy
for many persons is the very real prospect that at some
point they may have to confront anxiety.
•
REDUCING THE FEARS AND INHIBITIONS
CONCERNING PERSON ADVOCACY, Michael Kendrick.
Hesitancy in advocating derives from reasonable expectations
of costs and consequences for speaking up and advantages
for remaining silent.
•
AN ETHIC OF MODESTY IN THE SUPPORT
OF OTHERS, Michael Kendrick.
“Being there” for others is not some automatic inevitability
that emerges just because it is sought, needed, and
idealized.
•
THE POTENTIAL ROLE OF ADVOCACY
IN “IMAGINING BETTER”, Michael Kendrick.
The role of complainant, even though grudgingly seen
as legitimate, often leaves advocates appearing to be
people or organizations that are chronically dissatisfied
and unappreciative. This is unfortunate, as there is
usually a great deal more to be said and valued concerning
what advocates are actually about.
TOOLBOX FOR CHANGE, David Pitonyak.
These are tools for helping organizations to restore
purpose, joy and commitment to the workplace. See
Link.
•
IMPLEMENTING ORGANIZATIONAL CHANGE,
Derrick Dufrense.
Timely restructuring and re-thinking the way in which
provider agencies are funded and operated is a tremendous
opportunity. It may be time to finally admit that the
traditional agency as we know it is a dinosaur. See Link.
WHAT’S WORTH WORKING FOR: LEADERSHIP
FOR BETTER QUALITY HUMAN SERVICES, John O’Brien.
Leadership practices that contribute to organizational
capacity to support people, build alliances, and incorporate
skilled assistance into ordinary settings. See Link.
•
BUILDING STRONGER COMMUNITIES
FOR ALL: THOUGHTS ABOUT COMMUNITY PARTICIPATION FOR
PEOPLE WITH DEVELOPMENTAL DISABILITIES, Robert Brogan
and Steve Taylor.
Center for Human Policy, Syracuse University. Some thoughts
and observations on what it means for people with developmental
disabilities to be part of the community. See Link.
•
ASSISTANCE WITH INTEGRITY: THE
SEARCH FOR ACCOUNTABILITY AND THE LIVES OF PEOPLE WITH
DEVELOPMENTAL DISABILITIES, John O’Brien and Connie
Lyle O’Brien.
A discussion piece, intended to stimulate controversy
and dispute, about support for people who rely on service
providers for 24-hour assistance. It addresses the field's
concerns about such issues as safety, quality, and the
potential for abuse, and calls for major reorganization
of the current system of service provision. See Link.
•
UNFOLDING CAPACITY: PEOPLE WITH
DISABILITIES AND THEIR ALLIES BUILDING BETTER COMMUNITIES
TOGETHER, John O'Brien and Connie Lyle O'Brien.
A perspective on community building around and with
people with substantial disabilities and explores five
commitments that build community. See Link.
•
BEYOND DREAMS TO AMBITION, CREATING
EMPLOYMENT OUTCOMES, Robert R. Morgan.
The opportunities involved with self-determination are
so different from the life that most people with disabilities
experience. Getting into the competitive market will
require new and ambitious approaches. See Link.
•
CULTIVATING THINKING HEARTS:
LETTERS FROM THE LIFESHARING SAFEGUARDS PROJECT, Helen
Zipperlen and John O’Brien.
A social analysis raising critical issues that challenges
all of us to think about what are true safeguards. See
Link.
•
SAFEGUARDS
Addresses how safety can be increased by strengthening
community and improving the assistance people receive.
It also discusses the paradox of regulations. See Link.
•
THE LEADERSHIP CHALLENGE OF SERVICE
QUALITY, Michael Kendrick.
Quality generally refers to something done by human
beings at a very high level of excellence, oftentimes
in the sense of works of perfection as being distinctive
from inferior mediocre performance.
•
THE CHALLENGE OF DISCERNING THE
REAL FOUNDATIONS OF SUSTAINABILITY, Michael Kendrick.
Discusses the issue of what some people, initially at
least, might call the “sustainability” question as it
relates to public expenditure of services for people
with disabilities.
•
CHARACTERISTICS OF RISK ADJUSTMENT
SYSTEMS, Elizabeth Shenkman.
Increasing numbers of children and adolescents are enrolled
in some form of managed care arrangement. See
Link.
•
BUILDING COMMUNITY, Kids Built,
Inc.
Discusses the importance of breaking down barriers
to full community membership. See Link.
LEARNING ABOUT COMMUNITY SUPPORT
FOR THE FAMILIES OF CHILDREN WITH DISABILITIES: REFLECTIONS
ON THE LOCAL LIASON LEARNING GROUP, John O’Brien, with
Bryn Fortune, et.al.
Lessons learned by the Parent Leadership Program team
at The Arc of Michigan about local projects designed
to improve family support and creating effective parent-professional
partnerships. See Link.
•
COMMUNITY PARTICIPATION AND
SOCIAL NETWORKS: AN INFORMATION PACKAGE, Pam Walker.
Addresses issues and strategies related to promoting
community membership for people with developmental disabilities. See
Link.
•
NEGOTIATION, Steven Taylor.
Designed to enable disability activists, parents, and
advocates negotiate effectively.
•
MY HOUSE IS COVERED WITH PAPERS!
REFLECTIONS ON A GENERATION OF ACTIVE CITIZENSHIP, Connie
Lyle O’Brien, et. al.
Stories of five women, mothers of children with disabilities,
who have made and continue to make important contributions
to the civic work of shaping policies and programs that
offer people with developmental disabilities the opportunities
and supports they need to be full and responsible citizens. See Link.
•
MENTAL HEALTH: A REPORT OF THE
SURGEON GENERAL.
An overview of the Consumer and Family Movement. See
Link.
•
MAKING IT WORK: WHEN FAMILIES
THAT REPRESENT A SERVICE POPULATION BECOME EMPLOYEES,
Consortium for the Employment of Parent Representatives.
A workbook from Florida on how to set this program up. See Link.
•
THE NATURAL AUTHORITY OF FAMILIES,
Michael Kendrick.
With great regularity consumers of services and their
families will find themselves having to confront professionals,
bureaucrats, and others in role, of authority.
CRISIS IN THE COMMUNITY
A M. Smull classics. This 1989 reprint (a pdf file)
looks to have laid the groundwork for what would become
Essential Lifestyle Planning. See Link.
•
PERSON CENTERED PLANNING, SHOULD
WE DO IT WITH EVERYONE?
Person centered planning and person centered services
have become trendy. It has become a litmus test for
being politically correct. Any activity where people
are asked what they like or want is seen as person centered.
There are those who pose the question, is it right for
everyone? See Link.
•
A PLAN IS NOT AN OUTCOME
An article first printed in Impact Feature Issue on
Person-Centered Planning with Youth and Adults (1998).
Article discusses the importance of implementing the
plan to help the person achieve a meaningful life. See
Link.
•
REVISITING CHOICE (parts 1 &
2)
Choice is the most powerful word and the most abused
word in the current lexicon of the disabilities services
system. See Link.
•
A CRISIS IS NOT AN EXCUSE
Recently published in Impact Magazine. The article suggests
that one of the reasons that lifestyle planning for
people with challenging behaviors does not occur is
that we've created a culture of chronic crisis. See Link.
•
FAMILIES PLANNING TOGETHER: STARTING
WORK ON AN ESSENTIAL LIFESTYLE PLAN
This manual has been developed to help you develop an
essential lifestyle plan with your family member. See
Link.
•
LISTEN TO ME!
A way to get started in helping someone move towards
the life that he or she wants to lead. It can be used
by individuals and/or family members as a way to get
ready for an ELP or individual service planning session. See Link.
•
ESSENTIAL LIFESTYLE PLAN (EXAMPLE
PLANS) See Link.
Articles by other authors:
•
PEOPLE FIRST LANGUAGE, Kids Together.
Discusses the importance of using language which is
respectful and promotes inclusion. See Link.
•
FINDING A WAY TOWARD EVERYDAY
LIVES, John O’Brien and Herbert Lovett.
The insights that emerged from a Pennsylvania gathering
of people experienced in various approaches to person-centered
planning and administrators interested in learning more
about it. See
Link.
•
THE ORIGINS OF PERSON-CENTERED
PLANNING: A COMMUNITY OF PRACTICE PERSPECTIVE, Connie
Lyle O’Brien and John O’Brien.
Discusses the origins and development of person-centered
planning. See Link.
•
THE POLITICS OF PERSON CENTERED
PLANNING, John O’Brien and Connie Lyle O’Brien.
Describes the role of person-centered planning in relation
to personal and organizational politics. See
Link.
•
GREAT QUESTIONS AND THE ART OF
PORTRAITURE, John O’Brien.
Ideas that help lead to deeper thinking about a person's
identity, contributions, and connections to other people,
and the role of person-centered planning in relation
to this.
•
WHEN PEOPLE MATTER MORE THAN
SYSTEMS, Michael Kendrick.
A critical look at person centered planning.
SOMEONE WHO BELIEVED IN THEM
HELPED THEM TO RECOVER, Dan Fisher.
Our needs are human needs of which the most basic is
to enter into trusting, loving, and caring relationships.
These relationships need to be nurtured and cultivated
for us to find the compass of our true self to guide
our recovery. See Link.
•
ACCEPTANCE: SOME REFLECTIONS,
Leroy Spaniol and Cheryl Gagne.
Acceptance is one of the harder tasks of the recovery
process. See
Link.
•
RECOVERY-ORIENTED SERVICE SYSTEM:
SETTING SOME SYSTEM LEVEL STANDARDS, William A. Anthony.
A recovery vision of service is grounded in the idea
that people can recover from mental illness, and that
the service delivery system must be constructed based
on this knowledge. See
Link.
•
A WORKING DEFINITION OF EMPOWERMENT,
Judy Chamberlin.
A research project designed to measure empowerment in
programs run by and for mental health service users. See
Link.
•
RECOVERY WITH SERIOUS MENTAL
ILLNESS: CHANGING FROM A MEDICAL MODEL TO A PSYCHOSOCIAL
REHABILITATION MODEL, Mark Ragins.
Discusses the implications of changing models. See
Link.
•
REVIEW OF RECOVERY LITERATURE,
Ruth O. Ralph, PhD.
A synthesis of a sample of recovery literature 2000. See Link.
•
HOW PERSONS RECOVERING AND CLINICIANS
CAN PROMOTE SELF-MANAGED CARE, Daniel Fisher.
Applying the values of empowerment and recovery in practice. See Link.
•
INTEGRATING EVIDENCE-BASED PRACTICES
AND THE RECOVERY MODEL, Frederick J. Frese, PhD, et.al.
The authors suggest that the degree of support for evidence-based
practices by consumer advocates depends largely on the
degree of disability of the persons for whom they are
advocating.
•
WHAT IS RECOVERY? A CONCEPTUAL
MODEL AND EXPLICATION, Nora Jacobson, PhD and Diane
Greenley, MSW, JD.
This paper describes a conceptual model of recovery
from mental illness developed to aid the state of Wisconsin
in moving towards its goal of developing a “recovery-oriented”
mental health system.
IMPACT ASSESSMENT OF THE SELF-DETERMINATION
INITIATIVE FOR PEOPLE WITH DEVELOPMENTAL DISABILITIES,
Valerie Bradley and John Agosta, HSRI.
An impact of assesssment of the 19 states with Self-Determination
Projects funded by the Robert Wood Johnson Foundation. See Link.
•
THE POVERTY OF HUMAN SERVICES,
Thomas Nerney.
Self-determination addresses one of the great ironies
of our human services approach to supports, the near
absolute impoverishment of individuals within the most
costly system of "care" in the world. See Link.
•
TOOLS OF SELF-DETERMINATION:
COMMUNICATING SELF-DETERMINATION: FREEDOM, AUTHORITY,
SUPPORT AND RESPONSIBILITY, Thomas Nerney.
Technical and structural issues associated with truly
successful individual budgets; support brokering and
fiscal intermediaries are fundamentally necessary. See
how assisting individuals in achieving meaningful life
goals requires freedom and creativity. See
Link.
•
SELF-DIRECTED SUPPORT CORPORATIONS
(Microboards), Jackie Golden.
Small groups form a board around the person who needs
support by ensuring an opportunity to truly be person
centered. See Link.
•
FILTHY LUCRE: CREATING BETTER
VALUE IN LONG TERM SUPPORTS, Tom Nerney.
As we discuss the issue of money, public dollars, we
need to reflect on the adequacy of those dollars, the
distribution of those dollars and, finally, what those
dollars can legitimately buy. See Link.
•
SYSTEMS CHANGE: AN ILLUSIVE
DREAM OR FINALLY WITHIN REACH? Ellen Cummings.
Discusses the implementation of self-determination principles
into a system of service, and the hazzards of this process. See Link.
•
COMMUNITY ENGAGEMENT: A NECESSARY
CONDITION FOR SELF-DETERMINATION AND INDIVIDUAL FUNDING,
John O’Brien.
A paper based on a meeting of a working group of family
members, service workers, and people with disabilities
from Ontario, Canada, concerned about building a strong
foundation for community living. See Link.
•
THINKING ABOUT SUPPORT BROKER
ROLES, Michael Smull.
At its core, the work of a support broker is about partnership,
partnership with those supported and those involved
in their lives. See
Link.
•
MOVING TO A SYSTEM OF SUPPORT:
USING SUPPORT BROKERAGE, Michael Smull and Gary Smith.
Discusses the structure and responsibilities support
brokerage See
Link.
•
AFFIRMATION OF COMMUNITY, Thomas
Nerney, Richard Crowley, with Bruce Kappel.
A call to action for a revolution of vision and goals
by creating a community to support all people including
those with disabilities and an illustration of the depth
of change required if we are truly to become responsive
to people with disabilities. See Link.
•
IMPLEMENTING SELF-DETERMINATION
INITIATIVES: SOME NOTES ON COMPLEX CHANGE, John O’Brien.
Struggling for understanding, by identifying some of
the contradictions, limits, and reasonable opposition
that people who implement projects might encounter. See Link.
•
PEOPLE FIRST-THE CONSUMERS IN
CONSUMER DIRECTION, Thomas Nerney and Marisa A. Scala.
At the heart of consumer direction and self-determination
are the people who are directing and receiving services.
Here, four different populations who experience disabilities
are examined in their struggle to obtain consumer direction.
•
BEYOND MANAGED CARE: SELF-DETERMINATION
FOR PEOPLE WITH DISABILITIES, Tom Nerney and Donald
Shumway.
An opportunity to re-examine our present assumptions
regarding long-term care with an eye toward making it
more cost-effective, as well as bringing it into line
with the aspirations of people with disabilities and
families. See Link.
BUILDING SYSTEMS OF CARE: A PRIMER.
Shelia A. Pires Washington, DC: NTAC for Children’s
MH. 202-687-5000 – Mary Moreland.
All of NC has been awaiting a SOC 101 Manual (like the
NAMI PACT Manual listed below) and here it is. Quantities
are limited at the moment, but this is a must for the
basics in SOC best practice. Also, ask for NTAC’s publication
list or look for it and other good information on child
and family issues at: See Link.
•
APPLYING BEHAVIOR ANALYSIS WITHIN
THE WRAPAROUND PROCESS: A MULTIPLE BASELINE STUDY.
(Complete article with search engine for your use in
the future.) The wraparound process has become an important
component of many public sector service delivery systems.
In this study, a multiple baseline design across...
From Journal of Emotional and Behavioral Disorders,
December 22 2000 by Michael J. Myaard, Connie Crawford,
Michell Jackson, Galen Alessi Page(s): 17 See
Link.
•
CASELOAD SEGREGATION/INTEGRATION
AND SERVICE DELIVERY OUTCOMES FOR CHILDREN AND ADOLESCENTS.
In this article we explore the relationship between
the degree to which local systems of care share responsibility
for children and adolescents (measured... From Journal
of Emotional and Behavioral Disorders, December 22 2001
by John A. Pandiani, Steven M. Banks, Lucille M. Schacht
Page(s): 12 See
Link.
•
USE OF THE SYSTEM-OF-CARE PRACTICE
REVIEW IN THE NATIONAL EVALUATION: EVALUATING THE FIDELITY
OF PRACTICE TO SYSTEM-OF-CARE PRINCIPLES.
Evaluating the fidelity of service practices to system-of-care
principles (SOC) represents a challenge in the human
service field. The inadequate infusion... From Journal
of Emotional and Behavioral Disorders, March 22 2001
by Mario Hernandez, Angela Gomez, Lodi Lipien, Paul
E. Greenbaum, Kathleen H. Armstrong, Patricia Gonzalez
Page(s):14 See
Link.
•
THE DEVELOPMENT OF A STATE POLICY
ON FAMILIES AS ALLIES.
During the past 10 to 15 years, the participation of
families in planning, implementing, and evaluating community-based
children's mental health services... From Journal of
Emotional and Behavioral Disorders, December 22 2000
by Mary I. Armstrong, Mary E. Evans, Virginia Wood Page(s):
13 See
Link.
•
FAMILY PARTICIPATION IN EVALUATING
SYSTEMS OF CARE: FAMILY, RESEARCH AND SERVICE SYSTEM
PERSPECTIVES.
Service programs are paying increased attention to family
participation in research and evaluation activities.
This article describes the results of... From Journal
of Emotional and Behavioral Disorders, March 22 2001
by Trina W. Osher, Welmoet Van Kammen, Susan M. Zaro
Page(s): 12 See
Link.
•
ASSESSING THE PERFORMANCE OF
COMMUNITY SYSTEMS FOR CHILDREN. (IMPROVING THE QUALITY
OF HEALTHCARE FOR CHILDREN: AN AGENDA FOR RESEARCH)
Objective. To present a framework for measuring the
quality of community systems for children, based on
key attributes of systems performance for children's...
From Health Services Research, October 01 1998 by Helen
M. DuPlessis, Moira Inkelas, Neal Halfon Page(s): 23 See
Link.
Systems
of Care
Site is new but promises to be a good clearinghouse
for information
•
Wraparound
Planning
the site that will take you through the planning process
and be sure to go back to the home page for other
information; John VanDenBerg is the Michael Smull
(see Essential Lifestyle Planning above) of the SOC
world.
NC
Child Advocacy Institute Vision Statement says it all: All young North
Carolinians will be blessed with a happy, healthy,
safe childhood and adolescence. North Carolina will
become the best state in America in which to be a
child and to raise a child. Public policy will play
its legitimate role fully and effectively in creating
and sustaining such a state. The NC Child Advocacy
Institute will be instrumental in securing the public
policies and public appropriations necessary for this
Vision to become a reality.
John
Franz site
has PowerPoint presentations ready to use; John has
been a frequent trainer in NC and throughout the US
for his work in SOC and the JJDP collaborative efforts.
•
Promising
Practices Site
the best for my time; this site has the most information
on SOC, its history, practical applications, results
from the Federal Grant sites (including NC)
•
Family
SOC Manual
Substance Abuse & Mental Health Services Administration
(SAMHSA)
Center for Mental Health Services (CMHS) site for
families to understand the basics of SOC
•
American
Youth Policy Forum - Less Cost, More Safety
Rich DJJDP materials with descriptions of some SOC
national sites. This site has an article on Wraparound
Milwaukee & one on the State of MO that has an
11% recidivism rate (US avg. 40-70%) & how they
did this.
CONDUCTING A COMPREHENSIVE COMMUNITY
ASSESSMENT
Especially good for those Community Collabortives who
want to know what others are doing with community assessments
for youth and families. See Link.
•
CULTURAL COMPETENCE STANDARDS
Cultural Competence Standards in Managed Care Mental
Health Services: Four Underserved/Underrepresented Racial/Ethnic
Groups See Link.
•
WRAPAROUND FIDELITY INDEX
Yes, Wrap has a fidelity scale – if you are wanting
to know, “Am I really doing Wraparound”, try this site. See Link.
•
ARTICLE ON COORDINATED PRACTICE,
Mark O'Donnell, et.al.
Our own Child & Family Services Section staff on
Coordinated Practice Reviews, THE WAY to test systems’
“SOC-ness” and outcomes See Link.
UCLA MH in Schools Project
Rich, rich, has practice standards for different diagnoses
from the American Pediatric Association that are family-friendly. See Link.
IDEA
Web site
practical, useful, composed of Teachers & Related
Service Providers, Families, School Administrators
and Policymaker Groups and information about IDEA
and implications and implementations
TRAUMATIC STRESS DISORDER C &
A ASSESSMENT & TREATMENT GUIDELINES
The site is a search engine for guidelines for other
psychiatric conditions See Link.
Council
of Parent Attorneys & Advocates
A group of parents, who are attorneys and have children
with disabilities that can link you to a local organization
or make suggestions for areas that one could pursue
regarding laws and disabilities
•
Bazelon
Center for MH Law
If you want to know ore about law and disabilities,
including managed care, Medicaid and other technical
issues, here is the site that has been very useful
for issues with adults and youth who have disabilities
